Friday, July 18, 2014

6163 WK3: RESEARCH THAT BENEFITS CHILDREN & FAMILIES -UPLIFTING STORIES



I chose to discuss an article that shows some positive research and how they want to make sure it is ethically performed on the subject. It was interesting to find out a baby girl, at the time of first treatment was diagnosed with HIV. Doctors gave her “unusually aggressive and early treatment within 30 hours of her birth and she was free of the virus for 27 months” (Brown, 2014, para. 1-6), which made the disease disappear. This was quite exciting for the researchers –I am sure. Unfortunately, it came back, due to the little girl not receiving therapy for years. At age 4, the little girl from Mississippi was retested by Dr. Anthony Fauci of the National Institute of Allergy and Infectious Disease and decided to continue research for a cure.

Her mom decided to take her out of the treatments but eventually the disease resurfaced after a couple years. Researchers could not record data so no one knows if they could have kept the little free of the disease because the mom stopped the treatments only to bring her back later. They chose to put her back on the antiviral drugs. After beginning the treatments, it looked as if the disease was going back down. Dr. Fauci (2014) notates they will ethically come up with a design of study that will benefit her and future babies” (para. 10). In my opinion, the benefits outweigh the risk because they will make sure the child is not subject to cruel treatments and it is keeping her, hopefully from suffering -like most patients with this disease. In addition, it will be that much closer for researchers to finally come up with a positive outcome to a terrible plague.

Reference
Brown, Jeffrey. (2014, July 11). PBS Hour: HIV rebound in young child is ‘another step’ in long process of AIDs research. Retrieved July 18, 2014, from http://www.pbs.org/newshour/bb/hiv-rebound-in-young-child-is-another-step-in-long-process-of-research/#transcript

4 comments:

  1. This was an amazing story. A great testament to why research is important to families and children. NAEYC discusses why research is important to families and children. Thanks for you post - very interesting
    https://oldweb.naeyc.org/resources/research/

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  2. I really like this post! This is why research is done for sure. very interesting, indeed. Thank you.

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  3. It is very interesting that the mother chose to stop bringing her daughter in for treatment, yet brought her back a year later. I wonder if this could be considered negligent in any way? There is so much information that we don't know about diseases like HIV and cancer, and I know that there are researchers out there searching for cures, but it is hard to see families lose children every day.
    Thanks for opening my eyes to this subject!
    Machaela

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  4. A truly uplifting story of help and hope for one child and her family. It is only a pity that the mom removed the little girl from the treatment program for such a long time. However it seem as if she came back in time to still get help Research is so important, that is why we as early childhood professionals we have to stay abreast of new knowledge and research findings especially as they relate to childhood issues. Thank you for sharing, a great post Nakita!

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